The Children’s Hospital at Westmead provides comprehensive inpatient and outpatient services to children and adolescents with cystic fibrosis in NSW. Services are provided by a multidisciplinary team including physicians, clinical nurse consultants, dieticians, physiotherapists and social workers.
About Cystic Fibrosis
Cystic Fibrosis is the most common life threatening genetic disease affecting Australian children. Through newborn screening most babies are diagnosed within the first few weeks of life. Advances in treatment have seen improved quality of life and life expectancy for those with CF, but there is no cure. The Children’s Hospital at Westmead is also actively involved in cystic fibrosis research. The service includes:
- Inpatient services
- CF Outpatient Treatment Centre
- New diagnosis education, ongoing management and support
- Outreach service including school and home visits, community liaison
- Weekly CF Outpatient Clinic
- Clinical research
- Outpatient CF telephone service (office hours) provided by CNC’s
- Facilitation of CF family support groups
- Education evenings for families
- Education of medical and allied health professionals providing care for CF patients